Allie's transplant
story begins around the time she turned 16...
but there was lots of history before that.
This is Allie's story as read at the service to celebrate her life...
Alison
Eaton came into this world on the 28th February 1980 - the first child of
Anne and Bob.
She spent her early years in Blackburn in a close knit community called the
Dixon Grove Mob, many of whom are here sharing time with us today.
Her brother, Michael, was born three years later. They had the usual brother/sisterly
love often sparring over little things and defending each other against outsiders.
They were very happy times, lots of laughter, friends around, afternoons in
the pool at her Grandparents home, or at the beach with her other grandparents;
stealing the scene at Nursing Mum's meetings, toy library and playgroups.
Alison attended Pope Road kindergarten, where many of her childhood friendships
originated.
Allie loved fantasy, pretend games and dressing up. For her fifth birthday
she wanted to be a fairy and planned her birthday party around this theme.
All her friends were commanded to wear garden character costumes and they
did as they were told. Lunch was served on cabbage leaves and drinks were
flower nectar. Allie had a Butterfly birthday cake and declared it the happiest
birthday of her life.
Early school days were spent at Blackburn North Primary. It was a small school
and very caring, much like an extension of the family environment she had
found at Pope Road. Possibly her keen sense of community developed out of
the close relationships at Blackburn North Primary School, Dixon Grove and
surrounding streets. Many times games which were started at one neighbouring
house continued at others as mums caught up with each other over cups of coffee.
She loved school - always ready to be involved in anything, it didn't matter
whether she was good or not, she had a ball - just being part of the team.
Alison was challenged by mobility problems all her life. This didn't stop
her from giving absolutely anything a go! Her life was full of activities
- callisthenics at Wesley in Box Hill, Brownies and Guides at 1st Kerrimuir,
Sunday school at St Andrew's Box Hill and seven years with the Australian
Girl's Choir.
She went, in Grade Six to Ashburton Primary and then went on to Camberwell
High School. In the same way she had started primary school she started secondary
- with a operation to lengthen her achilles tendons. At this time she was
diagnosed with Emery Dreyfuss Muscular Dystrophy.
She loved much of her time at CHS and could usually be found wherever the
next musical was being planned. Getting around at school was a challenge -
nevertheless this didn't stop her from having roles in two school musicals
and helping backstage with many others.
Her church involvement went from Box Hill to East Malvern where she had some
happy times usually involved with children. It was true to say that wherever
children were Allie would be there helping to look after them. At Church fairs
our minister Wal Baker employed her as his " magican's assistant".
He remembers with fondness her enthusiasm for that task!
Many happy holidays were spent camping, at Wilson's Prom, walking and exploring.
Whenever we went for walks Allie would drag her feet unless there was a Ranger
involved and then she would be right up beside them. When camping was no longer
possible for her she expressed a gladness that she had experienced Wilsons
Prom 'at its best'.
At fifteen she joined the First Hartwell Venturer Unit and decided that she
wouldn't allow her physical difficulties to overcome her enjoyment of venturing.
She loved this time of her life!! She took full advantage of the social life
of this group and if Allie was nothing else she was an absolute social butterfly.
All through her adolescence she loved being with people, providing a sympathetic
ear, always a good friend. She has some wonderful friends from her time as
a 1st Hartwell Venturer.
When she was in year eleven Allie had an episode of glandular fever which
compromised her heart muscle. Cardiomyopathy was diagnosed. If Allie thought
that the past challenges were difficult the really serious ones were just
surfacing. The Royal Children's Hospital soon became a very familiar place.
She soon became adept at giving instructions on medical procedure, and many
an unwitting hospital staff member received the sharp edge of her tongue -
all in good grace of course!
Allie had a pace maker fitted at seventeen.
Her optimism never wavered, and rarely did her sense of humour.
As she grew older the Alfred hospital took over her health management, Health
challenges frustrated Allie as she was so busy trying to enjoy life that she
felt that she didn't have room to fit disability in as well. Her heart continued
to deteriorate and she was placed on the heart transplant waiting list shortly
before her nineteen birthday. And fourteen months later received a donor heart.
Allie spent two weeks in intensive care and another six weeks in hospital,
followed by fun times at Royal Talbot Rehabilitation Centre learning to walk
again.
Her
heart transplant in 2001 enabled her to pick up the threads of life again
and she continued her studies. She was currently studying VCE Physics and
Psychology at Box Hill TAFE. Her community involvement picked up as well and
she spent many hours as a volunteer with the MS Society and op shop helper
with DonCare. She also became involved with the Futures program at the Muscular
Dystrophy Association, a program for young adults with muscular dystrophy.
Scouting remained a big part of her life, she became a Rover at the Mullimbimba
Crew. She was invested while she was in hospital for some treatment - the
staff didn't quite know what to make of it! But they were impressed.
Her time in scouting was so significant - allowing her experiences she may
never have otherwise had - hiking into Ritchie's Hut, lilo-ing down the Howqua
River, dawn services at the Shrine, the list goes on...
About a year and a half ago she formed a relationship with a young man, Daniel,
who has become very much a part of our family. Daniel and several other friends
encouraged Alison's love of cars and the car clubs particularly teamAZM and
the Astina Car club became a big part of Allies life. She spent time, often
online, chatting to these and other friends, developing valuable friendships
in many directions. It's lovely to see many of those friends honouring her
here today.
Allie's health wasn't trouble-free and we were aware of some chronic rejection
happening with her heart. We knew she would have to face a second transplant
in the not-too distant future. On Saturday night the whole family attended
a 21st birthday party held for one of the Dixon Grove mob, Jo. Alison caught
up with many friends and had a very enjoyable evening. She came home earlyish
(for her) and went off to bed and quietly died in her sleep in the night.
True to style she circumvented the bad stuff and left us on a high.
Here is a collection of Alison's qualities, offered by some family and friends
as we sat around the table a couple of nights ago.
Snapshot of Allie Eaton
Allie always gave the best hugs.
She had empathy for everybody, loved to talk and always had a ready ear to
listen
Her happiest birthday celebrations were with family and close friends
She was always happy to see people, loved spending time with her grandparents.
She was a legendary procrastinator
Favourite colours - purple and blue
Favourite movies - The Crow, Labyrinth, Rocky Horror Show, Grease, Les Mis,
Moulin Rouge
Favorite drinks - Milo and Vodka - not together!
She loved:
her family
stuffed toys
partying
chatting on the internet with her friends
anything Gothic or Mythical
animals - Honey, her dog, and other peoples' cats
Sleeping in, (someone said her favourite outfit was her white towelling bathrobe)
little children.
Alison will continue to be loved and cherished by those who knew her, we are
enriched by having been part of her world.
We will miss her at every moment and be reminded of her often.